Observations placeholder

nightcat Tue 29-Sep-09 10:25:43

Booli, for us the standard gluten antibodies test was negative because we went gluten free a week before it was offered. I would have been still fumbling in the dark, but when he improved on the diet, we begged for a specialist genetic test (also blood) to see whether he had celiac or gluten-sensitive gene - turned out gluten-sensitive. This explained his improvement on the diet.
You said your ds had a virus, was it not long after any jabs? MMR? I have read that some children react like this after a jab.
A few years later my ds had electronic test that picked up that he had active measles virus in the system and I do recall him being very ill with very high temp and hallucinations within a month or so of the jab, then it all started with ear infections and he was poorly for ages although walking was not as severely affected as your ds.

What made me think his ill spell was possibly linked to the jab was when I became ill after my flu jab a few years ago and I am still suffering from after effects (ears).

So, even if the blood test your ds has proves inconclusive (they told me that celiac test can be negative/inconclusive in children anyway), don't give up the idea that going gluten-free can help - it has worked for us.

Add message | Report | Message poster

boolifooli Tue 29-Sep-09 13:18:52

Hi nightcat. I think he had a jab about a year before his problems but he did have a virus 6 weeks or so before his walking nosedived. It was an odd one. He had a full body rash that started off red and then went purple. We were backwards and forwards from the health centre and they just prescribed him aqueous calamine. He wasn't REALLY ill, just a mild temp and went off his food. he just looked really bizarre.