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The lived body – experiences from adults with cerebral palsy 02

Identifier

023246

Type of spiritual experience

A description of the experience

Clinical Rehabilitation 2007; 21: 432–441  The lived body – experiences from adults with cerebral palsy - Karin Sandström, Department of Health and Society/Physiotherapy, Faculty of Health Sciences, Linköping University, Sweden

To fight one’s way

Stubbornness was a characteristic for many in this group. They were fighting to manage activities and showing others and themselves that things were possible, striving for normality and autonomy. They also wanted to project themselves as competent people who could handle a variety of situations:

When people have said to me ‘you can’t do that’ ...you shouldn’t say that to me because then by golly, I’m going to make it work. (5)

Fighting spirit was a way of having control and experiencing the satisfaction of being competent and self-confident:

It’s really worth the fight, because I can say straight out that if I hadn’t fought ... if I had done what others wanted and thought, then I wouldn’t be sitting here. (2)

For some people, physical training was a way of fighting to maintain body functions. A fighting spirit was often expressed in relation to ageing. As a  37-year-old man stated:

The reason that I struggle the way I do is that I don’t want to sit in a wheelchair when I’m 45–50 ( ) I’ve decided to give age a fight. (19)

The source of the experience

PubMed

Concepts and Symbols used in the text or image

Activities

Observation contributed by: John Bryant